White logo with three abstract human figures above the text "ADIPOSITAS PACT STICHTING | FONDATION PACTE ADIPOSITE FOUNDATION FOR THE RIGHTS OF CITIZENS WITH OBESITY" on a light background.

Pacte Adiposité – Adipositas Pact is a Private Foundation established under Belgian law representing the rights of citizens with obesity.

 

Chapter 7

Rights concerningprimary and secondary useof our health information

Generally speaking, patients in Belgium are not very aware of the options as to how their data is used for clinical decision-making or for research/ population level monitoring. This is even more pronounced for People Living with Obesity

People Living with Obesity in Belgium come with a varied lived experience which is currently not captured in any of our health information or at population level.

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Table of Contents

  1. A protected legal status for the 4.5 million People Living with pre-Obesity and obesity in Belgium
  2. The right to a quality service from early diagnosis and screening through to treatment and long term management.
  3. A right to access to early diagnosis and screening for obesity in its own right
  4. Access to acute interdisciplinary treatment and long-term management
  5. The right to free choice of your healthcare provider
  6. The right to information about your state of health
  7. Rights concerning primary and secondary use of our health information
  8. The right to participate in shaping, monitoring and evaluating the healthcare system from policies to practices
  1. Patient reported outcomes should be designed and implemented involving People Living with Obesity
  2. Patient Reported outcomes should be integrated into the National Health Survey and related Sciensano studies
Chapter 6
Chapter 8
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Acknowledgements

The Foundation for the Rights of Citizens with Obesity is a non-profit Private Foundation established under Belgian law, led by citizens of lived experience with obesity representing our rights towards access to healthcare.

This project has been driven by and for us in collaboration with VUB and KU Leuven as Research Partners.

We would also like to acknowledge the financial support and contribution of expertise as part of the multi-stakeholder focus groups from Novo Nordisk Belgium, J&J Belgium and Third-i bvba in the realisation of all elements to this initiative.

Research Partners

Logo of Vrije Universiteit Brussel, featuring the acronym "VUB" in white letters on a blue square, with "Vrije Universiteit Brussel" written to the right in blue text.
The image shows the KU Leuven logo with white text on a dark blue rectangular background and a light blue border on the top and left sides.

Dissemination Partners

Logo of the Belgian Association for the Study of Obesity (BASO), with the letter "O" depicted as a yellow circular brushstroke.
Logo of Obesity Platform Belgium featuring a blue and green abstract circular design next to the text "OPB Obesity Platform Belgium" on a white background.